$20,000 in matching funds—give by midnight on World FSHD Day and your gift goes twice as far!
One community, one voice: Removing barriers for treatment approval and access for all.
Activity
More than 25 companies are developing treatments for FSHD. One is in a Phase 3 clinical trial, with others close behind. Hope is real—and so is the work still ahead.
The FSHD Society is dedicated to supporting a treatment across the finish line and to ensuring that, when it crosses, no one gets left behind—not Amanda, a self-employed single mom managing her own FSHD; not her teenaged son Benji who inherited the gene and now relies on a wheelchair; not Joanne, who has aged out of trial eligibility.
Your gift supports research that makes clinical trials faster and more compelling, which brings treatments to patients faster. In addition, your dollars fund advocacy that helps ensure approved treatments will reach everyone who needs them, not just those who qualified for a trial.
Join us—double your dollars, double your good!
Our Promise: No one should face FSHD alone. The FSHD Society is dedicated to accelerating research toward treatments and a cure while supporting individuals and families every day. This vital work is made possible through the generosity of our community—patients, families, volunteers, and donors who share our vision of a world without FSHD.
*Only donations made in support of World FSHD Day are eligible for this matching gift challenge. Gifts designated to Walk & Roll – including all locations, teams, and participants – or to other event fundraisers do not qualify.
The FSHD Society is a 501(c)3 tax-exempt organization, and your donation is tax deductible within the guidelines of U.S. law.